Showing posts with label multiple-myeloma. Show all posts

Focus On: Leukemia, Lymphoma, Myeloma and Bone Marrow/Stem Cell Transplantation Conference

Thursday, November 8, 2012 · Posted in , ,

Join the Abramson Cancer Center and the Leukemia and Lymphoma Society Friday, November 16 for a free conference about leukemia, lymphoma, myeloma and bone marrow and stem cell transplantation.

Leukemia, lymphoma and myeloma are cancers that start in blood-forming tissues such as bone marrow.

Who Should Attend?

This conference is for people who are newly diagnosed, in treatment, long-term survivors, or a parent, caregiver or loved one of someone with:
  • Leukemia, lymphoma, mutiple myeloma, myelodysplasia, myeloproliferative disorders
  • Bone marrow/stem cell transplantation: autologous or allogeneic
  • Nurses and social workers

Register for the Leukemia, Lymphoma, Myeloma and Bone Marrow/Stem Cell Transplantation Conference

The conference is free, and open to the public.

Date: Friday, November 16, 2012
Time: 7:30 am to 3 pm
Location: Hilton Hotel, 4200 City Line Avenue, Philadelphia, PA
Registration: Register here for the conference

Can’t Attend In Person?

If you can’t attend in person, view the Livestream of the event, at PennMedicine.org/Abramson/BloodLive , follow @PennMedicine on Twitter with the hashtag #BloodCancers, or join Oncolink from Noon to 1 pm for a Webchat about blood cancers.

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Multiple Myeloma Awareness Walk October 6, 2012

Thursday, October 4, 2012 · Posted in

Carly Roop RD, CSO, is a registered dietitian at the Joan Karnell Cancer Center (JKCC). She provides nutrition education and support to patients while addressing nutrition-related side effects from chemotherapy and radiation. Dietitians at JKCC provide educational nutrition programs that are open to patients as well as the community.

Staying active is key to the prevention of chronic diseases and it also plays a role in the prevention of cancer. Exercise can take many forms, this month I’m encouraging walking, especially for a cause! If you live in Philadelphia you can attest that there seems to be walk around the Philadelphia Art Museum, almost every weekend from April through November. These walks are a great way to be supportive and active at the same time, maybe even have some fun.

The Multiple Myeloma Research Foundation (MMRF) is hosting a 5K walk in Fairmount Park, October 6. Multiple myeloma is a cancer of the white blood cells, which are part of the body’s immune system. The National Cancer Institute (NCI) estimates 21,700 new cases of multiple myeloma were diagnosed in the United States in 2012. Multiple Myeloma constitutes as 1% of all cancers in caucasians and 2% of all cancers in African-Americans. It is more commonly diagnosed in men, and is a cancer that affects adults over the age of 65 years. This is not a curable cancer, but it can be treated. An impressive 90% of the total MMRF budget goes directly to research and related programming for multiple myeloma. Through research new treatments are being developed to allow individuals who have been diagnosed with multiple myeloma to live longer and more fulfilling lives.

Join Team Victory, the team’s founder has been an advocate for multiple myeloma since his diagnosis and received a transplant at Pennsylvania Hospital.

Sign up today!
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Philadelphia 5K Run/Walk for Myeloma April 28

Friday, April 20, 2012 · Posted in ,

Dan Vogl, MD is assistant professor of medicine at the Abramson Cancer Center. Dr. Vogl works with patients in the hematologic malignancies and bone marrow transplant program.

The Philadelphia Multiple Myeloma Networking Group (PMMNG) is holding their fourth annual Miles for Myeloma 5K Run/Walk  Saturday April 28 at 9 am on Martin Luther King Drive in Philadelphia.

Together with patients and their families, I’ll be there to help raise money to cure multiple myeloma.

The PMMNG is a fantastic group of patients and caregivers that provides support to the local myeloma community. Funds raised from this annual event support:

I am proud to be serving again as honorary co-chair for the event.

What is multiple myeloma?

Myeloma is a cancer of bone marrow plasma cells, which manifests in patients as low blood counts, painful bone lesions and fractures, kidney injury, and increased risk of infections. With several new medicines approved over the past 15 years, we can now routinely hope for many years of good quality life with the disease. However, we still do not have a cure, and improvements in therapy are certainly needed.

I became interested in multiple myeloma during my oncology training, and the focus of my career has become treating this difficult disease and researching ways to improve therapies.

Treating multiple myeloma at Penn

Penn’s Abramson Cancer Center has a great myeloma team.

Dr. Edward Stadtmauer, Dr. Brendan Weiss, and I focus on this disease, and we have a talented and dedicated group of nurse practitioners, chemotherapy nurses, research nurses, data coordinators, and staff, who all work hard to improve the lives of our patients.

Our current research program includes clinical trials for myeloma of completely new medicines, older medicines repurposed as anti-cancer treatments, exciting immunotherapy approaches using the body’s own immune cells to attack cancer cells, and improvements to bone marrow transplantation.

In addition, Dr. Weiss is expanding our research efforts to cover conditions that precede myeloma, like MGUS (monoclonal gammopathy of undetermined significance) and smoldering myeloma , as well as related disorders, like amyloidosis.

My own research has focused on improving currently available therapies for myeloma. This includes several ongoing clinical trials looking at ways to overcome resistance that myeloma cells can develop to some of our most effective therapies. We are actively working to understand how our treatments work, why some patients respond to them better than others, and how to make them more effective for everyone.

Support Miles for Myeloma

Events like Miles for Myeloma raise important funds to allow this important research to continue. Last year, more than 1,000 participants, volunteers, and sponsors raised more than $140,000 bringing the total raised by this event to over $400,000 since its inception in 2009.

My own research has been supported by the Leukemia & Lymphoma Society, so I have seen firsthand the effects of this kind of fundraising.

In addition, Miles for Myeloma is a lot of fun. The setting along the Schuylkill River is beautiful, the opportunity to be outside (hopefully in good weather) is wonderful, and the patients and families who participate are some of the most amazing people I have ever met. They also have snacks available and a raffle with some great prizes.

As is my tradition, I’ll be walking the 5K, since I have not run that far since college. I’ll look forward to seeing everyone there.

Register for Miles for Myeloma. Join the Penn Medicine / Abramson Cancer Center team by choosing “Join Your Team.”

You can find information about the Miles for Myeloma here.

Learn more information about the Philadelphia Multiple Myeloma Networking Group.
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